Steel wrapped in candy-floss


We walk among you.
The spoonies, the warriors.
The “my cups empty” or “my cup was never full”-ers
The workers, the fighters,
The planners, the pacers.
We are steel wrapped in candy-floss.

We are human, homo brokiensis,
Homo in-a-million-pieces
You think we are the same,
but you are blinded by
your own notion of normal.
You cannot see us.

I am my own definition of normal
Pain, exhaustion, these are my hot and cold.
I am human. I walk beside you.
Day by day, I limp, I smile.
I laugh. I am happy.
I hurt, I cry.

My secret is written on the inside of my skull.
My pain is wrapped around my neck like a scarf
My fatigue is a lead weight behind my eyes.
When the water’s high you stand tall,
I am dragged down. I learn to swim.
I am steel wrapped in candy-floss.


This has been a bit of an experiment for me. I have written poetry for a while, but normally I have focused it away from myself. For a long time, I have wanted to turn it inwards, and this is the result.

I am not a poet, any more than I am a blogger or a writer, but sometimes the mood takes me. If you have any comments or criticisms, please post them below and I will respond as I can.


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